Sunday, 1 May 2022

251. Better news

 I’m not going to fanfare yet as I have a CT scan coming up on Thursday and who knows what little gems they may discover. Sad to say the ‘lost’ left kidney must have gone into a sulk as I am now in the agonising process of trying to pass a kidney stone. Dr U could just about detect it on my last CT scan - why didn’t they mention it?? I could have had preventative treatment rather than risk giving birth!! Unlike pebbles, they seem to have very sharp edges so it’s no fun!

Ouch ouch aaaarrrgggh!

Friday clinic was more calm and sane than last time and the news was good. My MRI shows NO CHANGE and, although I do have a new skin met, my bloods are all good this time so Dr U believes there is “nothing significant” happening. We did talk about Trodelvy - he believes NICE and Gilead will compromise in the face of such vocal opposition (heartfelt thanks if you signed Breast Cancer Now’s open letter - 94,000+ signatures now and they need 100,000). He says we should cross that Trodelvy bridge when we come to it so I have more peace of mind now. Who’d have thought that I would actually believe what I’m told on trust lol!

https://action.breastcancernow.org/trodelvy-sign-our-open-letter?refsid=324761&utm_source=fb_share&utm_campaign=%5B93%5D&utm_medium=share&fbclid=IwAR3PU6ixp_XnGrL_f8DJiql0yDklDbD2PnO8mrjX175eijop8xAum5vBBPA

Boots don’t deliver on Bank Holidays so I wouldn’t get my chemo meds till Tuesday, which is too late. So we had to sit and wait. And wait. And wait. After two whole hours of waiting, I went to ask what the problem was - no blood results. So off we traipsed to track down the ‘fast-tracked’ blood samples (achieved second time with minimal bruising this time). The delay was in the lab. Sainsbury’s was delivering at 1pm, which seemed a safe enough margin for a 9.30 appointment, so eventually we had to just leave it. When we got home, I found two 9-tablet doses (from times when I just couldn’t face them) so I rang to arrange Tuesday delivery, rather than driving all the way back in rush-hour to collect them. Can you believe I was told they could add them to an afternoon delivery in this area!! They arrived at 4.30. A wasted morning when I’d planned to stop off for a late breakfast somewhere.

Meantime, I’ve had a couple of days of glorious sunshine to sit and read in the garden. I’m reading Tiny Songbirds Far Away for book group - about the harsh realities of life in Nigeria last century - which is quite interesting but not engaging and, on the kindle, The Dictionary of Lost Words, which had me hooked by the end of the first page. I’ve a long way to go - it may yet lose its appeal.

Enjoy your Bank Holiday, everyone, rain, shine or kidney stone xx

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